Wednesday, December 4, 2019

Observations on Visiting a Cancer Hospital…



It is pretty much known that my husband is a Stage 4 cancer patient.  Rather than get into the details and treatments, etc. I will say that “statistics” show that he has a five-year life expectancy.  But statistics don’t call the shots.  Only G-D can do that. MHN went undiagnosed for one year, not for lack of trying to figure out what was wrong. Doctor after doctor had one wrong diagnosis after another; yet fast forward, here we are starting year three. With cancer.  With metastasized cancer.

Most of his treatments are at Smilow in Guilford, though he has had to have tests at Smilow New Haven as well as a hospitalization at the St. Raphael campus of Yale.  That where he was finally diagnosed by a physician who had the bedside manner of a toilet seat.   But as we moved on and he was matched with a wonderful oncologist who learned how to listen to his patients, MHN’s situation improved.  MHN was able to share his concerns and fears and this doctor is working with him along his journey.

Upon entering the waiting room in Guilford, I am struck with the thought of “Oh, the humanity”, the same words uttered by Herbert Morrison upon seeing the explosion of the Hindenburg zeppelin.  Cancer has no mercy.  Children, young teens, people in their young adult life and much older people.  Some look very sick, pale and severely thin; others look like they stepped off a runway.  You can’t determine at what stage they are in their diagnosis, whether in remission, recently diagnosed or in on going treatments.  You just know as their first name is called, they have suffered. Or they will suffer. 

But one thing strikes me about nearly each and every patient.  They all have smiles on their faces and all seem to be at peace.  Whether looking at their mobile telephones or reading a magazine or book or quietly chatting with a companion, or even just calmly staring into space – maybe in prayer or meditation, there is a serenity about them.  I remember other people I have known who have had cancer and I remember thinking the same thing about them.  They almost looked angelic.  Whether this is a projection of my understanding that death may be closer for them than not, I do not know.

To work in a cancer hospital takes a special kind of person.  Whether physician, nurse, or office assistant, each of them was either trained in the loving care of these special people or they are just extraordinary human beings.  There is one volunteer who is at the hospital every single time we have been there.  I wonder “What is his story?”  How does a person choose to be in this environment? 

I don’t know how this story will unfold.  I know what I want and for what I pray.  But, who am I but someone whose life has been inconvenienced by cancer?  I lost a sister and my mother to cancer.  Both suffered tremendously.  Will MHN be spared or will I watch him eventually suffer beyond what seems tolerable for a human?

I sometimes think that those with cancer and the people who work with them are the chosen people.  We are all here to learn a lesson which can only be taught from the base of existence, way beyond thinking about what’s for supper or does the dog need a bath?  It goes way beyond that which we can understand until we are faced with our mortality.

To those patients and to those who work with them, may G-D bless you all.

Tuesday, September 3, 2019

The Hoarder in Me



From whence it started, I do not know.  I remember buying things which I now tend to hoard, on an as needed basis.  But, at some point, that stopped, and I started a buying frenzy.

I remember when Sarah was a child, I started taking advantage of back to school sales.  Instead of buying 5 notebooks, I bought 10 or 15.  Instead of buying 2 or 3 glue sticks, I bought 10 or 15.  Same thing with wrapping paper, especially when her school would have fund raisers.  I would buy several rolls of gift wrap, plus several rolls of holiday wrap when on half price.  So fast forward to 2019, I still have several notebooks and about 40-50 rolls of assorted gift wrap. You can never have enough…. until you do.  And I do.

When we moved into this house with its separate library, I believed I had carte blanche to buy as many books as I wanted.  Lots.  In my previous blog, I talked about my book hoarding.  Then, I went on a no spend year and stopped the madness.  Slowly, I have been giving away or donating books as well as finally reading those I had not had the chance to previously read.  I use the library when a new book comes out.  Put on hold, pick up, then read and return.  Now as we are getting ready to downsize, I am going at this book business a little more aggressively.

This carries on with my sewing habits (tons of fabric) and crafting supplies.  I am not getting rid of any of these as I do believe when that day comes when I am officially retired, I will use every sheet of beautiful paper, probably 1000s of them, as well as every yard of fabric. 

The latest discovery of my hoarding occurred when I decided to organize my recipes.  I am embarrassed to admit to you, though I will, in an effort at self-healing, that I have thousands of recipes.  I have four legal red ropes filled with recipes.  Two recipe boxes and one decorative cardboard box…filled.  In one email box, I have 450 saved recipes; in the second email box, 410 recipes and in my favorites, over #1000 saved.  All told, well over 3,000 recipes!!!

To organize, I started with the red ropes first.  Sorted recipes by category and weeded out those recipes that I know I will never make.  MHN is a Jewish lactose intolerant vegetarian.  (I might as well have tossed all the recipes in the trash!!)  I am cutting waaay back on the amount of beef and pork which I eat, so many of those recipes met their demise over this past long weekend.  My largest collection of recipes is in the “Goodie” red rope.  Cakes, pies, cookies, cupcakes and the like. Not so quick to lose those!!

So, aside from getting ready for the downsize, I am entering this assignment in anticipation of my new year resolutions.  Yes, I have already written them.  As Rosh Hoshana approaches, I haven’t yet decided at which new year these resolutions will commence, so stay tuned.  😊

(PS.  Interestingly enough, my daughter exhibited hoarder tendencies with beanie babies and lip balms; graduated to purses and shoes and now, as a sculptor, its her tools.  Her collection would make a grown man cry!)

Wednesday, August 7, 2019

I Can't Think of an Appropriate Title Right Now.......





My husband is a stage 4 cancer patient. He is doing very well, thank G-D, and I think people tend to forget how sick he really is. I am guilty of this from time to time as I add to his "Honey Do" list.  
  
Now, the folks who need to read this message will not see it, I am sure.  Therefore, this is strictly a vent on my part and not a passive-aggressive move to get a message across. 

To those people: I would like to say please do not call my husband to tell him all of your problems. Yes, he was trained as a clinical psychologist and he has the resources to help and guide. But, today, he is fighting for his life. Don't tell him how miserable you are, how bad your life is, how you would kill yourself if you could; don't ask him if you could move in with us so he could take care of you (Truth!!!)  (Besides, I am his wife and I am a part of the equation; most definitely you can not move in with us!!!). When he tells you about his fight for life in the past year, do not hang up the telephone on him because he is not coddling you. 

He doesn't want to hear how great you think Trump is and has told you this, but you persist. He is not into bragging about his family so stop asking him questions about them and their successes. He is much too wise to play that game. 

Because he looks well and because the perennial smile remains on his face, it is easy to forget he is sick.

Instead, ask what you can do for him. Or just be a friend and talk of pleasant things. Maybe send him a thinking of you card;  call him;  send him some funny jokes via email. Let him see you from time to time if he is up to it.  

MHN has some wonderful friends whom he considers to be his family.  When things looked very dire last year, I had to make funeral pre-arrangements and we wrote his obituary.  He named some friends by name as "sisters/brothers from another mother".  They call, they talk, they make him laugh, they encourage him.  You know who you are and may G-d bless you!!

There are four people who need to see this message, but they will not. I may delete this at some point, but right now, I feel better for having vented. That's all. Thanks for listening.

Saturday, July 20, 2019

It's Just Another Day......



Good morning! It's Saturday, the 20th and it's going to be a scorcher.  Shayna awakened me early (5:15), so up and at 'em!

Did my work-clothes-laundry, made blueberry ricotta muffins and watered some plants. Had a couple of cups of mild Bolivian coffee from Willoughby's and now I am here at the computer.  My favorite coffee is the vanilla hazelnut (from Willoughby's) which is quite subtle but I thought I would try this upon the barista's recommendation.  Home run!  Still have some chores to get done today; as soon as I finish this post.

If you remember from Nancy's Brain Chatterings back in the day, I had a book purchasing addiction.  I am happy to say I have beat it and have been in recovery for a few years. Now, I am a regular at the library.  When I read reviews of books which appeal to me, I put in a hold request (at the library) and I get an email when they are ready for pick up.  So, yesterday, I picked up 4 books.  As I will probably be in all weekend because of the heat (who am I kidding...if you know me at all, you know I am a homebody and am in most weekends - haha), so I am set with my weekend reading.

I am in the process of de-trumping my FB page.  My posts have all been anti-trump but every time I went on FB, his orange face was in my face.  Most of those  posts are gone, but make no mistake, I believe he has unleashed a wave of hate and cruelty in this country that we have never seen before.  I have my Elizabeth Warren bumper sticker on my car, but if she does not make it, that sticker will be replaced with the name of whomever wins the primary to oppose orange man.

Stay comfortable and hydrated.  Talk soon!  That's all for now.  Buona giornata, amici!  xo

Wednesday, July 17, 2019

Sigh!!


Some things that are recently annoying me....

Facebook

When a post is made and the comment is "so true".   (arrggghhhh!!!!!)

When someone makes a posting error and instead of correcting it, he/she adds multiple posts explaining what they meant.  (three little dots to the right of your post, click edit and fix it!)

When someone adds a comment to a post but does not read previous comments and thus adds to what others have already said 741 times.

When you belong to a specialty group, i.e. I belong to an Autumn group; we all love autumn and everyday, someone asks the same damn question:  "how soon do you start decorating for fall?"

Facebook and Life

When you speak your truth and others want to censure you.  You don't have to agree with me.  But I am entitled to speak my piece and my peace.

When one's best is no longer good enough for someone else.  Make a decision.  Walk away.  Stop harassing the soul who is treading the mill as fast as he/she can!

That's all for now; I'm sure I will add to this later.

I am curmudgeonly yours,


Thursday, July 4, 2019

The Best Laid Plans....


Well, another holiday and it's just me and MHN.  My daughter lives in Philadelphia & his son, in Cheshire, which is not so far, but he and his family have plans with friends. 

When our gas grill died, we gave it a proper goodbye (and did not replace it). We have hosted so many holidays, picnics and parties over the years, since we've been married and so many more before I knew him as I had a very active entertainment gene back then. We had the ridiculous idea that some of our previous guests might step up to the plate and invite us over once in a while.  Especially since he is sick.  What a fool believes....

So, we decided to try a little vegan place in Old Saybrook for lunch.  Since we would be driving up I-95, I asked to please swing by Job Lot in Clinton.  Shayna needed more rawhide bones.  We left the house at 11:00 AM and once we got off Exit 62, the Hammonasset Connector, we realized what a big mistake we made.  Took us at least 45 minutes to reach Rt 1 (normally, less than 5 minutes).  The beach entry was was blocked off with at least ten police cars.  Not sure if the lot was filled or something happened.  People were parking on the side of the connector and walking down to the beach.  That would be a very long walk especially carrying coolers and such.  (Or maybe that's my SC talking.)  It took another 15 minutes to Job Lot.    We got what we needed to get.  We were both so tired, we thought we'd go to a restaurant right in Clinton by the water.  Drove down there...not a parking space to be had. 

Decided to go back to the original idea and drove to Saybrook.  Found the place, went in, looked around  & walked back out.  A little too folky - hokey - hippie, no air kinda place.  Reminded me of Woodstock.  Not that there is anything wrong with that....just didn't light my fire. Today.

MHN said we'd get take out from our favorite Italian restaurant in Guilford.  We had a bit of a squabble as I wanted to go home first and he wanted to drive to the restaurant & order.  So, we went home. Found the take out menu, decided what to have, called to order and guess what?  They were closed. 

I went upstairs and changed into comfortable clothes .  Cooked a burger on the stove top, ate some pistachios, a peach and some Madagascar vanilla gelato.  Gave Shayna a new rawhide.  MHN put 60 miles on his car.  We are both crabby ass appletons. 

Happy 4th to you, too!!  Hope your day was better.  hugs! xo

Wednesday, July 3, 2019

Hello, I Love You.....





Yes, hello to whomever may have stumbled across this page.  My former blog, "Nancy's Brain Chatterings" has been reborn to "Brain Chatterings Part II".

This blog will contain similarly inane content as the first; various paragraphs of rant and rave, wishes, hopes, dreams, memories and probably, sometimes, a little TMI.

This past May, I hit **67**.  Not sure how this happened, especially when I have postponed so much of my life's desires.  I would think when this happens, when that happens, I will ....... but then, smack-bam-ala-kazaam, I am now closer to the end rather than the middle.

So, what's a gal to do?  Start living.  Of course, start living means different things to different people.  I don't expect to change my personality or do lots things that others do.  Travel is low on my list, though a trip to Italy & Sicily is on the aptly named Bucket List.  I am more introverted, but am friendly.  If I had a choice between reading a book or to go out drinking with other friends, well, I be reading.

I want to write and be published.  I want to play with crayons, pens, pencils, inks, fabric, thread, canvas, oils, watercolors, etc.  I want to be a great cook.  (Though, I am pretty good when the stars align just so!) I want to get rid of the fear that has held me back my entire life.  I want to learn to trust again.  I want to stop being intimidated by bullies.  I want kindness to rule.  And I want the swear jar (which MHN made me set up) to go away!! Yes, I can sometimes have a bit of a potty mouth.

As I sit here eating Good & Plenty at 11:30 in the morning and sipping cold coffee, flipping from Facebook to my email accounts while half listening to the husband yak away, I am thinking of some topics I might write about.

My plan will be to post later in the week.  Have a happy and safe 4th!